So it is now Friday and I truly am miserable. I am in so much pain. My neurologist upped my Tegretol and gave me a prescription for Baclofen and I am already on Neurontin. Nothings working. My tegretol ALWAYS helped the pain in the past. My neurologist wanted me to e-mail her last night to update her on my status. I am just waiting to hear back from her. I have no idea what could be next. She has to do something because I want to go to the hospital and ask them to knock me out for a week or two. I wonder if they would do that? Now that it I say it out loud, it really sounds like a good idea. Maybe I'll propose it to my Dr.
My husband has been researching all kinds of treatments. I have been calling him House because he seems to know more about this than me lately. He found this Gamma Knife thing that is a radiation treatment for Trigeminal Neuralgia and a bunch of other things and they do it right in the hospital that my neurologist works from. Maybe she'll know about this. Well see I guess.
Well, I am going to go read. It seems that if I can get myself absorbed in some fiction world I can somewhat ignoe the pain and I feel temporarily better.
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I really am sorry that you are going through all of this, but it scares me even more to know that my hubby may someday feel the pain that you are. I hope you can find some relief somewhere. My thoughts are with you
ReplyDeleteI just came across your blog and I am sor sorry for the pain you are going through. I am currently on the road to being diagnosed with MS and I in the ups and downs of trying to find medicine that helps with all the pain. I hope that you are able to get some relief soon.
ReplyDeleteThank you both so much. I have always been able to control the pain in the past with tegretol so we'll see what works. I have a great neurologist so I'm sure she'll figure something out!
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