NEW LESIONS, NEW MEDICINE

Well, I never got up the courage to call my neurologist again. I didn't have to, they called me and said the Dr. reviewed my MRI and wanted to see me the next day. Cool, right? You can look at that one of two ways. 1. It is bad news or 2. She is very thorough and wants to go over the test with me. I choose the latter. What is the worst they could tell me? You have MS? Been there, done that, no biggie.

So, I go and meet with her and I have new lesions. I am not surprised because I haven't been feeling the greatest and I am SSSSOOOOO tired lately. She doesn't feel that the Copaxone is working for me and wants to put me on Rebif. Fine by me, but I had just ordered another 3 more months of Copaxone the night before. I went home and called immediately to see if I could cancel it. Luckily it wasn't too late.

I really like this Doctor. She seems to really enjoy her work. The first time I met with her and was giving her my medical history, I told her that I had cancer as a baby she asked me what kind and I told her Neuroblastoma, she said "You're a keeper". She is just really fascinated by the science of it all. I guess that is what makes a good doctor.

TO CALL OR NOT TO CALL: THAT IS THE QUESTION

I made the decision to switch neurologists like 2 months ago. I just wasn't thrilled with the office staff at my old one. The Dr. was great, but the staff ( a whole 2 people) were always changing and not for the better. Last summer I had some issues with numbness, tingling and anxiety so I would call and leave a message and he would get right back to me to see what was going on. A few months back I called for 2 weeks trying to get ahold of him. The phone was consstantly going to the answering leaving messages that my Trigeminal Neuralgia was worse and that I was in alot of pain and I never heard from him. I really don't think he was getting the messages.



So, in April I went for an MRI ordered by my new neurologist because I will have been on Copaxone for a full year. I called more than a week later and left a message asking if they have gotten my results. I haven't heard anything yet but I am not sure if I am being impatient or if I should call again. I do not want to be annoying at all. I am just anxious to see what the results were.



I am so bad at this stuff. I am always worried about being nice and not bothering anyone. Everyone tells me that I need to take control of my health care and that I am the only one that is looking out for me. Guess they are right.

NOTE TO SELF: WORK ON GROWING A PAIR!